Starlight Stories The Starlight Child of the day is:
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Sarah
Sarah was diagnosed with leukemia when she was just 3 years old. Now 11 years of age, Sarah is battling this illness for the fourth time.
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Tristan
At 3 years old, with a baby sister having just arrived, Tristan was diagnosed with DIPG – a highly unstable cancer in the brain stem. Tristan passed away in June 2018, just before his 6th birthday.
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Joshua
From the age of 5 Joshua has been adding illnesses to his medical record. Currently they include: Ehlers-Danlos syndrome, complex regional pain syndrome, juvenile arthritis, gastroparesis, hypotonia, scoliosis and asthma.
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Ella
Ella was born with a serious defect called Transposition of the Great Arteries. At just 6 years old, she’s already had 9 heart surgeries. Each require a long recovery period, and she still needs extra oxygen at night.
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Cori
Cori has a lesion in her brain which causes seizures and sudden paralysis. She has had surgery to remove them, but one remains on the area which controls motor skills, and is therefore inoperable.
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Cole
Cole has an unknown form of muscular dystrophy, severe scoliosis and long list of other illnesses. Even the simple tasks of daily living are outside of his abilities.
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Mia
Mia lives with cystic fibrosis, a genetic condition which fills the lungs and other organs with thick, sticky mucus, as well as scoliosis, for which she’s needed spinal surgery.
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Madison
Madison is small but mighty. She has cerebral palsy and nephrotic syndrome. Her days are filled with appointments, therapies, surgeries and doctors’ visits, which doesn’t leave much time to be a kid of spend time with family.
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Delainey
Delainey was born with a rare chromosomal abnormality - full trisomy 13 / Patau syndrome. Children born with this condition are typically labelled as “incompatible with life” and 90% do not live past their first birthday.
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Avery
Having spent months at a time in hospital, Avery knows all too well what it’s like to be stuck somewhere you don’t want to be at the most exciting times of the year. With Starlight, we are able to offer her good moments in between the bad, like when she got to see Shawn Mendes live!
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Qadim
Qadim was born with Angelman Syndrome, a genetic disorder that mainly affects the nervous system. At five years old, Qadim has faced countless hospital visits and even more tests.
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Alisha
When Alisha was born, she went without oxygen and a heartbeat for a full 26 minutes. This caused damage to multiple organs, causing Alisha to spend the first seven and a half months of her life in hospital.